Sunday, June 5, 2011

Busy Days

The days have been very busy making it hard to update the blog, and then we have had no internet connection for the last ten days in the apartment and the reception is extremely spotty at the hospital.
Anyway to news on Michael.  We got good news on the virus in Michael's blood.  The viral load had decreased by over 80%!!  But, there are several other major issues:  trying to prevent Graft versus Host Disease (GVHD)--which they are doing the Photophoresis (he had on Thur and Fri last week and will get three times this week), and he has still had fevers so they have changed the antibiotics (which is possibly the cause of a big decrease in appetite in last two days).
The infectious disease doctor thought fevers probably due to neprhrostomy (kidney) tubes which were leaking and one had slipped a little out of position.  The doctors repositioned the one tube on the right on Friday.  But they found both ureters (from the kidneys to the bladder) were swollen from the original viral infection and so he will need the need to keep the neprhrostomy tubes in for a while.
With everything going on, Michael still gets out walking in the hall at least four times a day.  The doctor wants him moving, so that he does.  Tomorrow will be interesting in that the doctor who has seem him daily and made all the decisions will change and we will have a new doctor (they have two week rotations).  So we will be very interested in what this doctor has to say.
Melissa has been here since Wed night, but will go home tomorrow afternoon.  She helped get me caught up on some things around the apartment and she helped with Michael so I could get more rest.  Thanks Lissa.
Our special prayer requests:  for the Photophoresis to prevent GVHD, for the viral infections and any bacterial infections to continue to clear, for the kidney tubes to remain functioning well and for the return of his appetite.  
Thanks for your continued prayer and concern and support.  (The decrease in the virus is amazing!!)  Keep all the prayers coming.  Thank you!!!

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